We are excited to be asking people on dialysis, their care providers and the clinicians who look after them to share their ideas about the research that is required to meet their needs. This web site provides access to the questionnaire for those who wish to complete it, describes our research protocol (our plan) and the membership of the Steering Committee, and provides an opportunity for you to comment. We will eventually post the results of the study on this site as well.
- What’s the study about?
We are asking people on dialysis, their care providers and the clinicians who look after them to share their ideas about the research they think is needed to help improve the management and quality of life of people on, or starting, dialysis in the next year.
- Why is this study important?
People on dialysis and those who care for them “live the disease”, so they should have a say about what the most important research priorities are.
- How will the study be conducted?
We will follow an approach that has been used successfully by the James Lind Alliance in the United Kingdom (http://www.lindalliance.org/). Research priorities will be collected using a survey that will be completed by people on, or starting, dialysis in the next year, care providers and clinicians. The full list of priorities that is identified will be narrowed down to a “top 10” list by a group of people on, or starting, dialysis in the next year, clinicians and researchers. All questions identified, and the final list, will be published on our website and presented to researchers and organizations that fund research.
How to Participate
You can participate by completing a short, anonymous survey, in which you describe your research priorities. In order to be successful, we need as many people as possible to complete the questionnaire. We hope that you will share your ideas with us! If you have any questions, feel free to contact us.
- Our protocol, which provides details about the aims, objectives and methods of the project, can be found here.
- A list of all of the research priorities that were identified will be provided on this website when they are available.
- The final list of the top 10 research priorities will be provided on this website when they are available.
If you have any questions or comments about our study, please contact:
Dr. Andreas Laupacis
Li Ka Shing Knowledge Institute of St. Michael’s Hospital,
30 Bond St., Toronto,
Canada. M5B 1W8.